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The walk which took place during the 6 weeks school summer holidays of 2011, 24th July til 4th September was the most demanding experience I have ever done. Right from a couple of weeks running up to the start of the walk I was plagued with problems, all of my plans for the walk had to be re-written due to unfortunately having to undertake this nationwide event myself, due to all the hard planning, myself and my wife accomplished this, it was a great achievement, but I shall say that It was a very lonely journey which had so many high/low periods. I met thousands of lovely people within each area who gave me so many words of encouragement, I am overwhelmed at the amount of support that the nation gave me, each and every area were so warming to why I was passing through their area. I am even more taken back that our efforts attracted just as much support on an International level.
Between the nation's support, international support and knowing my wife and children were waiting for me to return, everyone gave me the drive,motivation and focus in achieving my goal, for this I would like to thank each and everyone of you, whichever corner of the globe you supported me from.
Now that I have fully recovered from this event I am more focused than ever in doing something similar to this in the forthcoming years, I will be having a film crew documenting the whole experience, which will be great not having to do my own filming, with the aim of doing a documentary about Lymphangiomatosis.
We have so many visions for the future, I do hope that you would still be interested in following our progress, as our campaign will be ongoing, as our children need us to change the path the future holds for them, as this condition will not beat us.
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Comments
Thank you all for your kind messages and supporting us. Nick is just about recovered now from the walk. We're still a huge way off our target though, so are still fundraising. we have set up a new website, and have some more events in line...i'm going to be freefalling and bungee jumping at some point next year. Please have a look at new website, thanks again Kelly x
Congratulations! I hope You get the best treatment for Ethan,and more physicians and researchers studying this disease
"we must do everything possible for our children"...Kind regards from Chile
Hi
I hope this finds Ethan in good health. I was diagnosed with Lymphangiomatosis about 2 years ago. I have just turned 52years old.
Remember there is always hope. I believe the chest/lung biopsies are high risk for people with this condition. I think there may be something comming in the American Medical Journals at some stage about this. I agree that America is your best option. Your son looks gorgeous and I wish you all the best.
Love and good thoughts to you all.May the wind be always at your back and the sun on your face. Annie (New Zealand)
Good to meet you today & hear about your family & learn a bit more about this condition. All the very best for the rest of the walk and the future :-)
Saw you outside Asda (Girvan) and took a look at your website, will be passing around the link to all friends and family to help with your effort. I wish you the best of luck and my thoughts are with you all. :)
fantastic to meet your family tonight and anything we can do to help during your stay at the norman jepson beefeater please let us know, hope u enjoyed the food
louise and the norman jepon team, preston.
Hi everyone, thank you so much for all your lovely messages and generous donations. Also i'd like to thank the owners of "The Old Post Office Pub" in the centre of Shrewsbury who have very kindly donated Nick a room for the night.
Thanks once again everyone, Kelly X
Good luck to you all! I hope our donation gets you further towards your goal of taking Ethan to the US for treatment!
Chris & Karensa
Sabrina Presutti 26.07.2011
Dear Nick and Kelly, I hope our donation who help towards the treatment of you little boy Ethan. We are praying for him and God healing powers would make your child better, just believe!x
I too was moved by your story in the Metro yesterday (25/7). Good luck with the walk Nick. May you reach your target so you can take young Ethan to the US for treatment. Kind regards, Lara.
Saw the article in the Metro and was moved by your family's situation. A small contribution towards your goal - wishing your family well.
Hi I would like to thank everyone that's been supporting us, we are very greatful. Nick's working very hard to achieve his goal, and without all you very kind people out there we wouldn't be able to do this. So thank you all very much, we really appreciate it x
Good luck with raising the money and awareness. No one should be going through this kind of thing. Be strong and positive and may all the health and good wishes be with you.
Good luck with everything, saw your story in the Metro and was moved, a small contribution towards an amazing cause!
Hi guys,
Read about you in the Metro this morning and was very moved by little Ethan's story - a small donation and hopefully every bit helps. Good luck with the walk and keeping fingers tightly crossed you raise the £70,00 necessary for the US treatment.
God bless x
Hi,
I have seen your details in Metro newspaper in London.
Wish you good luck
Sinem
Hi have you thought about setting a Paypal account up? Lot's of people use it for payment over the internet as it's more secure. I will be raising awareness of your little boys condition and related fundraising in my work place which is on a children's ward.
Read your story in the metro, and was moved, I really pray and hope you raise enough funds to get Ethan the treatment he needs. He will be in daily prayers. Warm regards..Saima
Well done with creating this site and very best of luck with the walk.
Hi everyone, we'd just like to say thanks to everyone that helped with the bag packing at Morrisons over the weekend, and also like to say thanks to the college students that did their sponsored walk for Ethan, and also to everyone that's supporting us x
loads of luv to you guys and all of your beautiful children , ethan is never far from my thoughts and if theres anything i can do to help please let us know
now that we have our own situation sorted i am hoping to be able to donate some more money and if we think of any other way of helping we will
Hope you collect a lot of money i am the guy who met you in weston super mare i gave you £20 and put £5 in the bucket.
Hey up bud
Was great chatting to you today about Ethan, your family and the great things you have planned to do to try & raise money. I will defo be keeping a track on his progress and the walk. Like many others no doubt your Son's story really touched me, we all take things for granted and greatfully assume our kids are going to grow up and live a healthy life. You never for a million years think an illness like this would effect your family, but the reality is it does. My aim is to try and raise awareness for your campaign and of Ethans illness. I struggle to walk to the car most days hehe but please keep me posted of any events you have and if I can help i will help and assist in anyway I can. Keep fighting, chin up and Happy Easter to you, your wife, Ethan and your family Adi Xx
We would like to thank everyone who has kindly donated/supported us so far for the upcoming event. If anyone would to follow our progress for the walk, we will be updating our website on a regular basis...
Thanks again for your kind generosity,
The Moss family x
Happy new year everyone! We would like to thank everyone for their support for Ethan and the walk, not long now! Thanks again...Nick & Kelly x
Dear Nick & Kelly, and Ethan, Gemma, Josh, Amy, Ellie, and Freya,
On behalf of all the patients and families affected with lymphangiomatosis, we send our encouragement in support of the effort you all are undertaking in the walk across the UK to raise funds, and to increase the awareness, of this orphan-disease. Most sincerely, we send our best wishes for Ethan's improved health.
Jack Kelly
President
Lymphangiomatosis & Gorham's Disease Alliance, Boca Raton, FL, USA. www.lgdalliance.org
Good luck mate, thinkin of you and your family and supporting you all the way ! x
Good luck mate.
Our thought are with Ethan.
Let's hope they find a cure soon.